VHL Patient Vignettes: Personal stories, thoughts, and tips submitted by people dealing with the diagnosis of von Hippel-Lindau

This compilation of vignettes is designed to help people newly diagnosed with von Hippel-Lindau (VHL) and their loved ones understand what they can expect. Realizing that there are so many different perspectives, we chose a format of vignettes by collating stories, recommendations, and tips from VHL patients and their families. Life with any rare genetic condition is not without its challenges, but the messages of the contributors are fairly universal:...

• Format: Paperback
• Language: English
• ISBN: 0692364196
• ISBN13: 9780692364192
• Release Date: February 2015
• Publisher: Vhl Alliance
• Length: 36 Pages
• Weight: 0.12 lbs.
• Dimensions: 0.1" x 5.5" x 8.5"