The Scleroderma Book: A Guide for Patients and Families

by Maureen D. Mayes

Book Overview

An autoimmune disease in the family with Lupus, Rheumatoid Arthritis, and Polymyositis, Scleroderma afflicts hundreds of thousands of people in the United States. And yet there are very few sources of information for men and women with this disease. Now, in The Scleroderma Book, one of the nation's leading authorities provides a comprehensive guide written specifically for patients and their families.
Dr. Maureen Mayes has drawn on her extensive...

• Format: Hardcover
• Language: English
• ISBN: 0195115074
• ISBN13: 9780195115079
• Release Date: July 1999
• Publisher: Oxford University Press, USA
• Length: 192 Pages
• Weight: 0.84 lbs.
• Dimensions: 0.9" x 5.6" x 8.4"

Customer Reviews

comprehensive and clearly written

As a nurse practitioner, I felt that the info in this book was very comprehensive... I also felt that the language was well written in commonly-used descriptive terms, so that any lay person could also understand the content. Very helpful info and practical advice.

A must have for the newly diagnosed.

Before this book my husband and I felt lost trying to find answers. It answered all of our questions from what lab work needed to be done to why I might be having certain symtoms. I even recommended this to my Docter to tell his other patients about. This is a must for everyone diagnosed and family alike.

Highest Endorsement from International Scleroderma Network

As President of the International Scleroderma Network (www.sclero.org), this is one of my favorite books to recommend for all scleroderma patients and their family and friends. Dr. Mayes is a world leader in the field of scleroderma and her clinic is a member of the international Scleroderma Clinical Trials Consortium (SCTC). Moreover, Dr. Mayes is an extremely popular speaker at scleroderma events, due to her clear, friendly, and down-to-earth style. I have met her, and I have also heard from a great many of her patients, all of whom have spoken very highly of her. If your life has been affected by scleroderma, GET THIS BOOK NOW. You'll be happy you did!

I have Scleraderma

Being diagnosed with this disease was overwhelming for myself and my family. There were so many questions. Where were the answers? I was being treated by a doctor specializing in rheumatoid arthritis. I hit the internet and found a "specialist" in my metro. area. I am now under the care of Dr. Maureen Mayes. At this time her book had not yet been released. I feel lucky that I have her knowledge in treating scleraderma and in her book she can share that expertise with others. The book has been extemely helpful in explaining to family and friends what scleraderma is and how it can be treated.

Highly Recommended Reading For Scleroderma Patients

This is a balanced and informative book, so much so that I am passing it on to my doctor with the recommendation that he tell all his scleroderma patients about it. I've learned a lot through the internet and by careful observation of what's going on with subtle physical changes we experience with scleroderma. This book does a great job of tying it all together in an easily understood presentation that's helpful as well for family and support groups.