I literally could not put this novel down. It grabs you on page one and never lets you go, never lets you relax. It procedes with high emotional intensity to the end. This is a novel that teaches -- about mitochondrial disease, about Munchausenn's, about the failings of the child protective system in this country, and about our own human failings. It does so in an extremely well-crafted story. I read it wide-eyed and...
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I have never known anyone accused of Munchausen Syndrome by Proxy (MSBP), a specialized attempt to harm a child, nor have I known a child who has suffered Mitochondrial Disease. Maribeth Fischer took me into the life of one such family on Christmas Eve in the year 2000 in her book The Life You Longed For. The story of how the family, friends, acquaintances, state agencies, and courts treated a mother accused of intentionally...
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In "The Life You Longed For," Maribeth Fischer exquisitely captures the fierceness born out of necessity of mothering a sick child that everyone but the mother has given up on. By it's very nature, mitrochondrial disease is elusive in diagnosis, perplexing in symptoms and frustrating to doctors who cannot seem to stop it's inexorable progress. The Connolly's finally have a diagnosis for their three year old son, Jack but one...
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The reviewers who have called this book an "exploration" are right on target. I was a little disappointed to see the number of jacket blurbs from authors who are women because I thought it may have suggested that this is a woman's book, and it is no more necessarily a woman's book than Job is necessarily a man's book. Both books feature a central character whose life is animated by unconditional love and devotion; in both...
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The Life You Longed For is an awesome book for a book club because it has a good story and also teaches you a lot as you read it. Along side the exciting drama of a mom accused of making her child sick to gain attention, the author weaves in intriguing historical facts about the Salem witchcraft trials. She connects how the community of Salem accused women of being witches when it couldn't explain unfortunate events, like...
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