I have been living with ALS (Amyotrophic Lateral Sclerosis / AKA Lou Gehrig's Disease) for six years. The neurologist who diagnosed me said that the average time between diagnosis and death is one to three years. I had never seen a book written by a 'regular person' living with ALS. I get that. Many people would, quite literally, run out of time or they would have more urgent priorities.Although I had spent my entire adult life working in the field...