Cystic Fibrosis: A Guide for Patient and Family

by David M. Orenstein

Book Overview

This one-of-a-kind guide offers easy-to-understand explanations, advice, and management options for patients or parents of patients with cystic fibrosis. The book explains the disease process, outlines the fundamentals of diagnosing and screening, and addresses the challenges of treatment for those living with CF. As one reviewer said, this book "is the only complete answer book for everyone living with the disease. It is an indispensable resource...

• Format: Paperback
• Language: English
• ISBN: 1608317536
• ISBN13: 9781608317530
• Release Date: August 2011
• Publisher: LWW
• Length: 416 Pages
• Weight: 2.40 lbs.
• Dimensions: 0.8" x 6.3" x 9.0"

Customer Reviews

very informative

i was given this book as a 'free' gift from a drug company that makes cystic fibrosis medication. my son diagnosed was diagnosed at age 5 when he had his pre-k physical. yes...it was very useful after my husband and myself could not find any detailed UPTODATE material on cystic fibrosis...thank goodness more helpful information and websites on cf are out now for newly diagnosed patients and their parents...new parents stay away from grandma's old medical guide on cf you will only find very brief and very grim outdated material...ask your medical team for info or search the web for info on cf

Knowledge is power!

My daughter was just diagnosed with CF. The pulmonary specialist gave me a copy of this book and I couldn't put it down. It is certainly a valuable reference tool in how to best combat this condition. We only hope a third edition will be put into print soon so as to update all of us on the constantly changing advances made in the field. Buy this book and keep it accessible, you will need it!

A Definite "Must Read"

This book is an essential read for: Anyone who has a child with CF, anyone who has a friend with CF, anyone who has a sibling with CF, anyone who has a spouse with CF, anyone who has a parent with CF, anyone who works with people with CF. In short, if you have any contact at all with someone with CF, this book can help educate you. I have had CF for 25 yrs now, and I learned more than a few things.

I have read every bit of material on CF this book has it all

Since my daughter was diagnosed 11 years ago with CF I have searched for any bit of material of this disease I could find. What I did find was bits and pieces that did not cover all the aspects of CF. This book leaves nothing out. I have shared it with my whole family.

Invaluable resource for parents of children with CF

This book is a must-read for all parents that have children who are diagnosed with Cystic Fibrosis. It answers many questions before you even know how to ask them! It explains what is going on in the body in terms that anyone can understand. Reading this book helped me to understand what the doctors were telling me at one of our appointments. I highly recommend it.