Coping with a Myositis Disease

by James R. Kilpatrick and Compiled by James R. Kilpatrick

Myositis refers to inflammation of the muscles ("MYO" means muscle and "ITIS" means inflammation). Myositis is a mystery disease in several diseases: Polymyositis (PM) means inflammation of many... This description may be from another edition of this product.

• Format: Paperback
• Language: English
• ISBN: 0970167105
• ISBN13: 9780970167101
• Release Date: September 2000
• Publisher: Kilpatrick Publishing Company
• Length: 172 Pages
• Weight: 0.56 lbs.
• Dimensions: 5.5" x 8.5"

Customer Reviews

Recommended reading

Having worked for an organization that supports myositis patients and their families for more than three years, I feel confident in recommending this book to all those who suffer not only from an inflammatory myopathy, but any autoimmune disease.The first-person accounts give the book a real, honest, down-to-earth account of what one might face when one of these illnesses strikes him/her or a loved one. Reading theses stories can help to eliminate the feeling of aloneness one experiences when diagnosed with a rare disorder.Thanks to Jim for compiling this excellent reference and for all those who contributed their stories. You folks are wonderful!

Dermatomyositis Patient

I want to personally thank Mr. James Kilpatrick, for his outstanding presentation of a Myositis patient's point of view. I for one know exactly what it feels like to have Dermatomyositis. When Mr. Kilpatrick asked for volunteers to share their personal story regarding Myositis, I jumped at the chance to give some insight, in hopes that it would help someone in the same predicament. Myositis is a scary disease, but the pain and agony it causes can be slightly relieved, knowing that there are others in the same boat. Once I read the book, I passed it onto others, so they could come to understand what our new life styles are really like. Both my primary physician and my rheumatologist were highly interested in this book. I was so moved by the various stories, that I volunteered to be our local state support group leader. Thanks, again for publishing such a moving and enlightening book.

Coping with a Myositis disease

When i started reading the book, i have found peace within myself. Jim K's "Coping with a Myositis disease, has shown that i am not alone, and what i am going through is real. His presentation was excellent, using personal stories, of which i can relate too. I have found in the last few days, people who have read the book know exactly what i am going through. I just left a copy with my Rhematologist. He looked at it and said he would read it too. I feel that Jims book has opened my eyes and i have started the acceptance stage of this illness. I was in denial for at least a year. Jim Has done a great job in his presentations of all the myositis' forms. I know now that what happens to me through the book is really real. I want to take this time to personally thank Jim for his effort and fine Job.

A must-read for any Myositis patient, caregiver, doctor

This book is unlike any other written for the Myositis patient or caregiver. It's a compliation of stories written by the patients themselves, in their own words. There is a section for each major type of Myositis (Dermatomyositis, Polymyositis, Inclusion Body Myositis, and Juvenile Myositis).Each of the stories has their own value and rhythm and style; some are concise and factual, some are long and filled with emotion. Together, they create a tapestry of struggle and support and hope. The stories are verbatim accounts from patients; as a result, there are plenty of spelling errors and grammatical mistakes. Rather than detract from the stories, they add a sense of realness and honesty to them.There is so little affordable information available about this disease that this book is an absolute must-read for anyone faced with it. Caregivers, too, can gain insight into what their loved ones are going through. Doctors could better understand their patients. Even sufferes of other, similar diseases would benefit from reading this book. Highly recommended.

Book is One of a Kind

When a person is newly diagnosed with a chronic disease as Inclusion Body Myositis (IBM), the world suddenly comes apart. Gone are your hopes, your dreams and aspirations.We are scared beyond belief because we know there is no cure, no medication, no treatment for IBM. Not having any thoughts of this incurable disease, our lack of prepartion for the changes in our lives, our families, our lifestyles, our finances, the realization that life will never again return to what it once was.The Myositis patients in this book talk about their respective disease with accuracy, sensibility, compassion, and practical knowledge that all good things must come to an end and we have to accept the day-by-day acceptance and endurance of the disease.I understand that Mr. James Kilpatrick brought to fruition the idea of the book until it was actually in book form in just less than seven months. What an accomplishment! Those Myositis associationals groups on the Internet should jump at the chance of offering this book to their memberships.Best wishes to Mr. Kilpatrick and to the thousands of sufferers of having a Myositis disease.